The dwarfs, as it quickly became apparent with the most severely disabled. Most of the children in that group were completely non-verbal, many non-responsive, often violent towards themselves and others, and often with limited or impaired mobility.
When we took the tour the first day, I knew the day we were with these children was going to be the hardest. I still remember vividly walking into the room, their common room very different from the other groups, who often had toys everywhere, beautiful murals of children, and Disney movies on the walls, music playing, etc, instead the dwarf common room was more like a small corridor, plainly decorated with about 10 to 15 chairs lined up on both sides of the room. Most of the children sat in those chairs, rocking back and forth, making loud groans, whines, and shrieks, appearing completely unaware of the world around them. It was honestly horrifying, scary, and extremely saddening. It became even more heartbreaking as the week progressed and we realized most of the children in that room rarely leave that room. There day consists of sitting in those chairs, rocking back and forth. This is not to fault the nurses, they are wonderful and their patience astounds me. But when we visited the dwarfs there was 3 nurses, for 20+ kids. It takes all their energy an effort just to make sure no one is being violent towards themselves or others, nevermind being able to provide stimulation to each individual child.
The violence was another difficult challenge in spending time with these kids. We were of course warned in general that many of these kids can be violent towards themselves and others, but then certain children got even more specific warnings attached. One such warning was of a certain boy, in his teen years, who we were told to never turn our back to, because he will bite you and not let go. Most cases weren’t as severe as that, but it was still scary at points. Many of the kids pinched, hard. Also, since the staff was so limited often to control the kids the nurses are forced to restrain them, so many kids are taught to hold their hands behind their back, and in more extreme instances some kids had arm and even leg restraints at all times.
One of the hardest moments for me was when a nurse was having difficult with a stronger child who had escaped his leg restraints. She called me over to firmly hold that child’s legs while she locked them in and tied the restraints. It was heartbreaking, because even though the child was non-verbal, the whales, cries and shrieks of pain were still very audible, and they still stay with me now.
The dwarfs were the most challenging group to face for my entire team, because they aren’t children you can jump around with, or talk with, or have any sort of seemingly simple interaction with. Often they would have moments of seeming to be there with you, responding to you, and then the next second, they would be gone. Consumed in their own mind. It was challenging, and it was those days that are really hard now thinking back on, to deal with.
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